Resources

Parents Helping Parents


Utah Resources

211 UTAH INFORMATION AND REFERRAL CENTER
Address: 1025 South 700 West
Salt Lake City, UT 84104
Phone: 211
Toll-free: (888) 826-9790
Website: www.informationandreferral.org
Purpose: 211 Info Bank, a program of Community Services Council, is a free information and referral line for health, human, and community services. 211 provides information and referral on topics such as emergency food pantries, rental assistance, public health clinics, childcare resources, support groups, legal aid, and a variety of non-profit, governmental agencies.

ACCESS UTAH NETWORK
Address: 155 South 300 West, Suite 100
Salt Lake City, UT 84101
Phone: (801) 533-4636
Toll-free: (800) 333-8824
Website: www.accessut.org
Purpose: Access Utah Network is a statewide information and referral service providing information on issues related to people with disabilities. Information is disseminated primarily via telephone. On their website, you can find information on disability-related events, services, and products.

ACCESSIBLE HOMES FOUNDATION (AHF)
Address: P.O. Box 26383
Salt Lake City, UT 84126
Phone: (801) 969-8475
Phone: (801) 696-8124
Website: www.accesshomes.org
Purpose: The AHF is dedicated to promoting the development of accessible homes for people with disabilities, educating home builders and the public on the need for accessible housing, specifying criteria for accessible homes, listing accessible homes for sale or rent, providing referrals to other agencies as needed, and planning to assist low income persons with disabilities to have a home to meet their needs.

ACUMEN FISCAL AGENT, LLC
Address: 1350 West Business Park Drive
Orem, UT 84058
Phone: (801) 852-0661
Toll-free: (866) 242-2714
Website: www.acumenfiscalagent.com
Purpose: Acumen Fiscal Agent is a service specializing and working with self determined/self-directed populations and programs. Acumen is a Fiscal Employer Agent and helps hundreds of individuals; guardians and caregivers take charge of the supports they and/or their dependents receive. Acumen helps those receiving services and their families by writing vendor checks, payroll checks and paying withholdings to state and federal agencies.

AGING AND ADULT SERVICES, DIVISION OF
Address: 120 North 200 West, Room 325
Salt Lake City, UT 84103
Phone: (801) 538-3910
Toll-free: (877) 424-4640
Website: www.hsdaas.ut.gov
Purpose: The Division administers the Adult Protective Services program to protect seniors and adults with disabilities from abuse, neglect, or exploitation. Adult Protective Services workers provide services designed to assist victims.

ALEXANDER GRAHAM BELL ASSOCIATION FOR THE DEAF AND HARD OF HEARING - UTAH CHAPTER
Address: 998 West 1930 North
Pleasant Grove, UT 84062
Phone: (801) 785-5997
Website: www.agbell-utah.org
Purpose: The AG Bell Association for the Deaf and Hard of Hearing is the world's oldest and largest membership organization promoting the use of spoken language by children and adults with hearing loss. Members include parents of children with hearing loss, adults who are deaf or hard of hearing, and professionals in fields related to hearing loss and deafness. Through advocacy, publications, financial aid, and scholarships, and numerous programs and services, AB Bell promotes its mission: Advocating independence through Listening and Talking!

ALLIES WITH FAMILIES
Address: 505 East 200 South, #25
Salt Lake City, UT 84102
Phone: (801) 433-2595 or (800) 477-0764
Fax: (801) 521-0872
Website: www.allieswithfamilies.org
Purpose: Allies with Families, the Utah Chapter of the Federation of Families for Children's Mental Health was created in 1991 to offer practical support and resources for parents and their children and youth who face serious emotional, behavioral, and mental health challenges.

ASSIST, INC.
Address: 218 East 500 South
Salt Lake City, UT 84111
Phone: (801) 355-7085
Purpose: Accessibility design for home modifications.

AUTISM COUNCIL OF UTAH
Address: P.O. Box 1931
West Jordan, UT 84088
Phone: (801) 913-6203
Website: www.autismcouncilofutah.org
Purpose: The Autism Council of Utah is an independent counsel working to foster collaboration, communication, and learning among families and agencies by supporting statewide partnerships to collaborate on resources, research, and training.

AUTISM DIAGNOSTIC CLINIC
Address: 650 Komas Drive, Suite 208
Salt Lake City, UT 84108
Phone: (801) 585-1212
Website: http://healthcare.utah.edu/uni/services/youth/index.html
Purpose: The Autism Diagnostic Clinic at the University of Utah specializes in evaluations of autism spectrum disorders (autism, Asperger Syndrome, Pervasive Developmental Disorders). The clinic is staffed by Judith Miller, PhD (psychologist), Deborah Bilder, MD (psychiatrist and pediatrician), and Leslie Speer, PhD (school psychologist). We offer comprehensive autism spectrum diagnostic evaluations, which involve the Autism Diagnostic Observation Schedule (ADOS) and Autism Diagnostic Interview (ADI). When indicated, we provide psychiatric consultation coinciding with the psychological evaluation. We see individuals of all ages, from toddlers through adults, and individuals of any functioning level from very severe to very mild. We also specialize in the more complicated cases of ASD, which sometimes involves other medical or psychiatric issues.

AUTISM INFORMATION RESOURCES AT THE UTAH PARENT CENTER (FORMERLY THE AUTISM SOCIETY OF UTAH)
Address: 2290 East 4500 South, Suite 110
Salt Lake City, UT 84117-4428
Phone: (801) 272-1051
Toll-free: (800) 468-1160
Website: www.utahparentcenter.org
Purpose: The Autism Information Resources at the Utah Parent Center provides information, referral and trainings to families and professionals who live and work with individuals with autism and autism spectrum disorders, such as Aspergers. They also have resource lists for various topics relating to Autism Spectrum Disorders.

BABY WATCH EARLY INTERVENTION - UTAH DEPARTMENT OF HEALTH
Address: 44 North Medical Drive
P.O. Box 144720
Salt Lake City, UT 84114-4720
Phone: (801) 584-8201
Toll-free: (800) 961-4226
Website: www.utahbabywatch.org
Purpose: This program provides early identification and developmental services for families of infants and toddlers, birth to age three. There are 16 local programs in the state of Utah that provide these Early Intervention services. A list of service providers and locations can be downloaded by visiting their website.

BEST BUDDIES
Address: 3333 South 900 East, #115
Salt Lake City, UT 84106
Phone: (801) 468-1200
Website: www.bestbuddiesutah.org
Purpose: Changing the world one friendship at a time. Through Best Buddies, individuals with intellectual disabilities receive improved socialization skills that lead to securing rewarding jobs, living independently, and most importantly, making life changing friendships.

BIG MAKS (MOMS OF AUTISTIC KIDS)
Phone: (801) 944-1729
Purpose: MAK's is dedicated to giving and offering support to other mothers of children with Autism Spectrum Disorders. They have a support group and a play group that meet weekly in the summer and occasionally throughout the year. They also have a lot of fun stuff to buy!

BLIND AND VISUALLY IMPAIRED, DIVISION OF SERVICES FOR
Address: 250 North 1950 West, Suite B
Salt Lake City, UT 84116-7902
Phone: (801) 323-4343
Purpose: The DSBVI has developed programs to help meet the needs of Utah citizens who are blind or have significant visual impairments. In addition to providing vocational rehabilitation services, DSBVI offers other services including. These services are provided to individuals at the Center for the Blind and in the community statewide.

BRAIN INJURY ASSOCIATION OF UTAH, INC.
Address: 1800 South West Temple, Suite 203
Salt Lake City, UT 84115
Phone: (801) 484-2240
Toll-free: (800) 281-8442
Website: www.biau.org
Purpose: This Association is the only non-profit organization dedicated exclusively to education and support for the issues of prevention and recovery of brain injury in the state of Utah.

CANINE COMPANIONS FOR INDEPENDENCE
Phone: (760) 901-4300
Website: www.cci.org
Purpose: The Mission of Canine Companions for Independence is to enhance the lives of people with disabilities by providing highly trained assistance dogs and ongoing support to ensure quality partnerships.

CARMEN B. PINGREE SCHOOL FOR CHILDREN WITH AUTISM (PRIVATE SCHOOL)
Address: 780 S. Guardsman Way
Salt Lake City, UT 84108
Phone: (801) 581-0194
Website: www.carmenbpingree.com
Purpose: The mission of the Carmen B. Pingree School for Children with Autism is to provide comprehensive treatment, education, and related services for children with autism and their families. They use and develop best practices, validated by research, while treating students and their families with dignity and respect. They partner with families, universities, service agencies, the government and our community to assist and lift those affected by autism, its causes and eventual cure.

CARSON SMITH SPECIAL NEEDS SCHOLARSHIP
Website: www.carsonsmithscholarship.org
Purpose: A state funded program, administered through the Utah State Office of Education, which provides eligible students with special needs tuition assistance for private school.

C.A.S.T. FOR KIDS
Phone: (801) 524-3664
Website: www.castforkids.org
Purpose: C.A.S.T. for kids was formed in 1991 to join volunteers who love to fish with disabled and disadvantaged children for a day of fishing in the outdoors. People can leave their problems on the shore for a day of fun on the water!

CENTER FOR PERSONS WITH DISABILITIES - UTAH STATE UNIVERSITY
Address: 6800 Old Main Hill
Logan, UT 84322-6800
Phone: (435) 797-1981
Toll-free: (866) 284-2821
Website: www.cpd.usu.edu
Purpose: It is their vision that individuals and their family members exercise independence and self-determination across their lifespan as communities support full participation and informed choices. They also focus on education and awareness of Americans with Disabilities Act (ADA), targeting businesses, community organizations, and individuals.

CENTRAL UTAH CENTER FOR INDEPENDENT LIVING
Address: 491 North Freedom Blvd.
Provo, UT 84601
Phone: (801) 466-5565 (Voice)
(801) 466-9910 (TTY)
Website: www.cucil.org
Purpose: To assist persons with disabilities in achieving greater independence by providing services and activities which enhance independent living skills and promote the public understanding, accommodation and acceptance of their rights, needs and abilities.

CEREBRAL PALSY OF UTAH DBA FOUNDATIONS FOR INDEPENDENCE
Street Address: 3550 South 700 West
West Valley City, UT 84119
Phone: (801) 266-1805
Website: www.ffiutah.org
Purpose: The mission of Cerebral Palsy of Utah is to advance the independence, productivity, and full citizenship for people with disabilities.

CHADD OF UTAH
Phone: (801) 537-7878 (voice mail)
(801) 789-3952 - Melanie Hatch
Website: www.chaddofutah.com
Purpose: CHADD is an all-volunteer organization dedicated to be your source on AD/HD issues! (CHADD = Children and Adults with Attention Deficit/Hyperactivity Disorder)

CHILD, ADOLESCENT, AND ADULT BEHAVIORAL HEALTH CLINIC
Address: 650 Komas Drive, Suite 208
Salt Lake City, UT 84108
Phone: (801) 585-1212
Website: http://healthcare.utah.edu/uni/services/youth/index.html
Purpose: The Child, Adolescent, and Adult Behavioral Health Clinic also offers various forms of treatment for ASDs , including individual and family therapy, parent education/consultation, education regarding parents rights in the schools, classroom observations and support, behavior management, social skills, anxiety management, and sibling support/education.

CHILD AND FAMILY SERVICES, DIVISION OF
Address: State Department of Human Services
120 North 200 West, #225
Salt Lake City, UT 84103
Phone: (801) 538-4100
Purpose: Provide social services to people who meet eligibility requirements; responsible for programs for families, adults, and children.

CHILD CARE RESOURCE AND REFERRAL METRO
Phone: (801) 355-HUGS
Toll-free: (866) 438-4847
Website: www.cssutah.org (click on the Child Care Resource & Referral tab)
Purpose: To connect families to child care. Serves Salt Lake and Tooele Counties and can connect you to Child Care Resource and Referral throughout Utah.

CHILDREN WITH SPECIAL HEALTH CARE NEEDS, BUREAU OF
Address: Utah Department of Health
Division of Community and Family Health Services
44 North Mario Capecchi Drive
Mailing Address: P.O. Box 144610
Salt Lake City, UT 84114-4610
Phone: (801) 584-8284
Toll-free: (800) 829-8200
Website: http://health.utah.gov/cshcn
Purpose: To improve the health and functional status of all children in Utah with Special Health Care needs by assuring access to comprehensive, coordinated, and quality care that is family-centered and community-based.

COMMON GROUND OUTDOOR ADVENTURES
Address: 355 North 100 East
Logan, UT 84321
Phone: (435) 713-0288
Website: www.cgadventures.org
Purpose: Common Ground Outdoor Adventures' mission is to provide affordable and accessible recreational opportunities for youth and adults with disabilities in Northern Utah.

COMMUNITY AND FAMILY HEALTH SERVICES, DIVISION OF
Mailing Address: Box 142001
Salt Lake City, UT 84114-2001
Phone: (801) 538-6161
Purpose: CFHS provides services that are related to health promotion, maternal and child health, and services for children with special health care needs.

COMPUTER CENTER FOR CITIZENS WITH DISABILITIES
Address: 1595 West 500 South
Salt Lake City, UT 84104
Phone: (801) 887-9380
Toll-free: (888) 866-5550
Purpose: To help improve the lives of children and adults with disabilities by introducing them to the ways in which microcomputer technology can enhance their jobs, careers, and education.

COURAGE REINS - THERAPEUTIC RIDING CENTER
Address: 5870 West 10400 North
Highland, UT 84003
Phone: (801) 756-8900
Website: www.couragereins.org
Purpose: The Mission of Courage Reins is to improve the quality of life for people with disabilities. Through therapeutic horseback riding and other equine based activities, we provide a safe, fun, and challenging setting for physical, cognitive, social, and emotional growth.

CTA - COMMUNITY SUPPORTS
Address: 4444 South 7000 East, #203
Salt Lake City, UT 84107
Phone: (801) 268-4887
Toll-free: (888) 268-4887
Purpose: CTA is a private non-profit organization that provides support for people with autism and their families and helps promote community acceptance. They provide residential support, day support, and family support.

DDI VANTAGE EARLY INTERVENTION PROGRAM
Address: 535 East 4500 South #D 140
Salt Lake City, UT 84107
Phone: (801) 266-3939, ext 0 for Operator
Website: www.ddivantage.com
Purpose: DDI Vantage Early Intervention Program serves children under the age of 3 who have developmental delays and disabilities.

DEAF AND HARD OF HEARING, DIVISION OF SERVICES FOR
Address: 5709 South 1500 West
Salt Lake City, UT 84123
Phone: (801) 263-4861 (Voice)
Phone: (801) 263-4860 (TTY)
Toll-free: (800) 860-4860 (Voice and TTY)
Website: www.deafservices.utah.gov
Purpose: An organization through which the general welfare of the deaf and hard of hearing can be improved.

DIRECTIONAL DESIGN - CLOTHING ADJUSTMENTS FOR PEOPLE WITH DISABILITIES
Anna Rafferty
Phone: (435) 678-3409
Email: raffertya@frontiernet.net

DISABILITY LAW CENTER
Address: 205 North 400 West
Salt Lake City, UT 84103
Phone: (801) 363-1347
Toll-free: (800) 662-9080
Website: www.disabilitylawcenter.org
Purpose: The Disability Law Center is a private, non-profit organization designated by the Governor to protect the human and civil rights of people with disabilities in Utah through legal advocacy. Their services are statewide and free of charge.

DISABILITY OUTREACH COMMITTEE (DOC)
Phone: (801) 347-7516
Purpose: The Disability Outreach Committee (DOC) serves the Salt Lake Valley focusing on the residents with disabilities of the County Housing Authority.

DISABILITY RIGHTS ACTION COMMITTEE
Address: 3565 South West Temple, #16
Salt Lake City, UT 84115
Phone: (801) 685-8214
Purpose: A non-profit organization committed to expanding and assuring the rights of people with disabilities so they can "boldly go where everyone else has gone before".

DISABILITY SUPPORT CENTER FOR FAMILIES
Address: 1574 West 1700 South
Salt Lake City, UT 84104
Phone: (801) 973-0206
Email: disabilitysupport@cpd2.usu.edu
Purpose: The Disability Support Center for Families will help you design a plan for your future and find resources including healthcare, medical equipment, respite, food stamps, cash assistance, heating, and more. They can also help you find education, training, and work.

DIVISION OF SERVICES FOR PEOPLE WITH DISABILITIES, (DSPD) ADMINISTRATION OFFICES
Address: 195 North 1950 West
Salt Lake City, UT 84116
Phone: (801) 538-4200 (Voice) or (801) 538-4192 (TTY)
Website: www.dspd.utah.gov
Purpose: They promote opportunities and provide support for persons with disabilities to lead self-determined lives. They oversee home and community based services for more than 4,000 people who have disabilities. Support includes: community living, day services, supported employment services, and support for people with disabilities and their families.

DOWN SYNDROME - SEE UTAH DOWN SYNDROME FOUNDATION

EARLY INTERVENTION SERVICES - SEE BABY WATCH EARLY INTERVENTION PROVIDERS

EASTER SEALS - GOODWILL NORTHERN ROCKY MOUNTAIN
Phone: (406) 761-3680
Website: www.esgw-nrm.easterseals.com
Purpose: Easter Seals-Goodwill Northern Rocky Mountain provides services for children and adults with disabilities and other special needs and support to their families.

EPILEPSY ASSOCIATION OF UTAH
Address: 1995 West 9000 South, Level B
West Jordan, UT 84088
Phone: (801) 566-5949
Website: www.epilespyut.org
Purpose: The Epilepsy Association of Utah is dedicated to providing education and support services for individuals and families dealing with the many challenges of epilepsy.
Services include:
Support Groups - Monthly meetings to provide groups education and information as well as emotional support. For information call (801)566-5949 or email wanda@epilepsyut.org.
Helping Other People with Epilepsy (H.O.P.E.) Mentoring Program - The program provides trained speakers for community presentations to educate the public and help them understand more about epilepsy and it's effects. The presentations can be tailored to meet the specific needs and requirements of each group. Contact the Epilepsy Association at (801)566-5949 or email margo@epilepsyut.org or margothurman@comcast.net.
Summer Camp - Camp is designed to give the kids, age 10 to 18, an opportunity to enjoy the company of others experiencing like concerns. Contact the Epilepsy Association at 801-566-5949 or email kris@epilepsyut.org or montanorb@yahoo.com.
Annual November Epilepsy Conference - Conference is designed to bring the at-large community of Utah together to discuss and present issues relative to epilepsy. Contact the Epilepsy Association at 801-566-5949 or email montanorb@yahoo.com.
CROP - Annual Scrapbooking Fund Raising Event. Contact the Epilepsy Association at 801-566-5949 or email kris@epilepsyut.org. If interested in volunteering with the Epilepsy Association of Utah contact them at 801-566-5949 or email montanorb@yahoo.com

FAMILIES FOR EFFECTIVE AUTISM TREATMENT (F.E.A.T.)
Website: www.utahfeat.org
Purpose: To provide education, support, and guidance to Utah Families of children on the autism spectrum and to enhance the community of professionals and educators serving those families.

FAMILY DISABILITY RESOURCE LIBRARY - Center for Persons with Disabilities, Utah State University
Address: 6825 Old Main Hill
Logan, UT 84322-6825
Phone: (435) 797-7022
Website: www.cpd.usu.edu/frl/
Purpose: This library features a collection of over 2,000 books, videos and audio materials containing information for individuals and families of persons with disabilities.

FAMILY SUPPORT CENTER
Midvale Center
Address: 1760 West 4805 South
Taylorsville, UT 84123
Phone: (801) 955-9110
Sugarhouse Center
Address: 2020 South Lake Street
Salt Lake City, UT 84105
Phone: (801) 487-7778
Website: www.familysupportcenter.org
Purpose: Services of the FSC have expanded to include prevention outreach to schools, daycare centers, churches and civic organizations. Extensive efforts in reaching out to Salt Lake County's ethnically diverse communities have brought success, most notably through collaboration such as Midvale Community Building Community Initiative. Services and materials are available in Spanish.

FAMILY TO FAMILY HEALTH INFORMATION AND EDUCATION CENTER - SEE UTAH FAMILY VOICES

FAMILY TO FAMILY NETWORK - A PROGRAM OF DHS/DSPD
Address: 2290 East 4500 South, Suite 110
Salt Lake City, UT 84117-4428
Phone: (801) 272-1051
Toll-free: (800) 468-1160
Website: www.utahfamilytofamilynetwork.org
Purpose: The Family-to-Family Network (formerly called Family Councils) is a statewide organization that provides education and support to families who have a member with a disability. There is a network of local support groups who meet regularly and locally. Call the number above to find a group in your area.

FEATHER TOUCH AQUATIC THERAPY/SWIM
Phone: (801) 209-1521
Email: lizcairo@xmission.com
Purpose: The purpose of Feather Touch is to meet each individual's needs in a water-based environment through techniques like: Cranial Sacral in the water, Feldenkrais in the water, Bad Ragaz, Ashton Patterning, Hollowick, and a variety of techniques from the Aquatic Therapy Rehabilitation Institute. Sensory integration, trunk stability and strengthening, fine motor skills, gross motor skills, endurance, and water safety are also all taught.

FETAL ALCOHOL COALITION, UTAH
Phone: (800) 822-2229 (Pregnancy Risk Line)
Email: jrobertson@utah.gov
Website: www.dsamh.utah.gov
Purpose: Fetal Alcohol Spectrum Disorders (FASD) is an umbrella term describing the range of effects that can occur in an individual whose mother drank alcohol during pregnancy. These effects may include: physical, mental, behavioral, and/or learning disabilities with possible lifelong implications. The Coalition is dedication to education and prevention of FAS.

FIVE P MINUS SOCIETY (5P-)
Phone: (801) 392-2628 - Georgia Richey - Georgia@richey.cc
Website: www.fivepminus.org
Contact: Executive Director - Laura Castillo - lc5pminussociety@aol.com Toll Free 1-888-970-0777 Purpose: To encourage and facilitate communication among families having a child with 5p- Syndrome (Cri-du-chat) and to spread awareness and education of the syndrome to these families and their service providers.

GUARDIANSHIP ASSOCIATES OF UTAH, INC.
Address: 320 West 200 South, Suite 140-B
Salt Lake City, UT 84104
Phone: (801) 533-0203
Purpose: Guardianship Associates serves individuals who have intellectual or related disabilities. They are dedicated to providing guardianship services and information.

HEALTH INFORMATION, EDUCATION AND SUPPORT - SEE UTAH FAMILY VOICES

HEALTH SERVICES, JORDAN SCHOOL DISTRICT
Address: 7501 South 1000 East
Midvale, UT 84047
Phone: (801) 412-2519
Purpose: Health Services is dedicated to increasing district awareness of the need for health insurance for all students and promoting and facilitating applications for Medicaid and state health insurance programs for children and adults in Jordan School District.

HOME CHOICE
Address: 95 W. Golf Course Rd., Suite 104
Logan, UT 84332
Phone: (435) 753-1112
Purpose: HomeChoice is a single-family mortgage loan designed to meet the mortgage underwriting needs of people who have disabilities or have family members with disabilities living with them. HomeChoice mortgages offer flexibility in the areas of loan-to-value ratios, down payment sources, qualifying ratios, and the establishment of credit.

HOPEKIDS
Address: P.O. Box 1226
Layton, UT 84041
Phone: (801) 546-HOPE (801) 546-4673
Email: cr@hopekids.org
Website: www.hopekids.org
Purpose: For children fighting life-threatening illnesses, rare are the days when they can laugh and play like other kids. HopeKids believes that by bringing joy to these remarkable children via an ongoing schedule of special events and activities we can help cultivate hope, acceptance, and most importantly the will to live.

INFORMATION AND REFERRAL CENTER
Address: 1025 South 700 West
Salt Lake City, UT 84104
Phone: (801) 978-3333
Phone: 211
Website: www.informationandreferral.org
Purpose: Comprehensive resource center for information and referral in the area of human services.

INTERMOUNTAIN COLLABORATIVE TRANSITION CENTER
Address: Virginia Street at Fairfax Road
Salt Lake City, UT 84103
Phone: (801) 536-3523 and (801)536-3500
Purpose: The ICTC is a nonprofit organization that contracts with other agencies and/or individuals to provide transition services for young adults with disabilities age 13 and older. Their mission is to help young adults move into adult health care, access adult services, create opportunities for adult living, and provide resources and education important for independence.

ISLAND LEARNING SOLUTIONS, LLC
Address: 1817 East Bryan Road
Erda, UT 84074
Phone: (435) 224-2490
Website: www.islandlearningsolutions.com
Purpose: Island Learning Solutions has created a planner to help families of children with Autism Spectrum Disorders.

KIDS ON THE MOVE - EARLY EDUCATION, INTERVENTION AND HEAD START SERVICES
Address: 475 West 260 North
Orem, UT 84057
Phone: (801) 221-9930
Website: www.kotm.org
Purpose: Kids On The Move is a non-profit organization based in Orem that provides support and services to children and families in Utah County. Kids On The Move serves families with children birth to age three, including families of children with special needs and also low-income families.

KIDS WORLD PRESCHOOL
Address: 1328 West Stern Drive
Taylorsville, UT 84123
Phone: (801) 243-4991
Website: www.kidsworldpreschool.org
Purpose: This unique preschool takes the traditional classroom and customizes learning for every child. Kids World staff works with children of all abilities such as: Autism, PDD, Speech Delays, Down Syndrome, Aspergers, Behavior challenges, Cerebral Palsy, and Developmental Delays.

KINDRED SPIRITS
Phone: (801) 232-1430
Website: www.kindredspiritsart.org
Purpose: Kindred Spirits is a community based non-profit inclusive fine arts program designed especially for children with diverse disabilities, their families and their friends. Children without disabilities work side by side those with special needs and each is accompanied by an adult apprentice. Together everyone learns about art and each other.

KOSTOPULOS DREAM FOUNDATION/CAMP K
Address: 2500 Emigration Canyon Road
Salt Lake City, UT 84108
Phone: (801) 582-0700
Website: www.campk.org
Purpose: The Kostopulos Dream Foundation provides recreation and leisure opportunities year-round through two main programs, Camp Kostopulos Summer Camp and Community Based Leisure Education program. The community based program runs September through May and applies to kids, teens and adults. Participants participate in community activities such as: bowling, swimming, dining out, tours, the arts, and social events.

LEARNING DISABILITIES ASSOCIATION OF UTAH (LDAU)
Address: PO Box 900726
Sandy, UT 84090
Phone: (801) 553-9156
Website: www.ldautah.org
Purpose: The Learning Disabilities Association of Utah (LDAU) helps individuals with learning disabilities and those who support them through education, support and advocacy. LDAU is an all-volunteer organization consisting of individuals with learning disabilities, their families, educators and other service professionals.

LEGISLATIVE COALITION FOR PEOPLE WITH DISABILITIES (LCPD)
Address: PO Box 120
Springville, UT 84663-0120
Website: www.lcpdut.org
Purpose: The mission of LCPD is to advocate for public policy affecting all people in the state of Utah who have disabilities.

LIAISON FOR INDIVIDUALS NEEDING COORDINATED SERVICES (L.I.N.C.S.)
Address: 5180 South Commerce Drive, Suite P
Murray, UT 84107
Phone: (801) 281-4425
Toll-free: (877) 335-4627
Purpose: L.I.N.C.S. assists individuals with disabilities, their families, community partners, and pertinent agencies in collaborating as a team to identify, design, and implement services and programs unique to the individual client.

MARBLES FOR MIRACLES
Phone: (801) 735-3870
Website: www.marblesformiracles.org
Purpose: Marbles for Miracles is a not for profit organization; founded by caring parents and together with the help of the art community; is providing resources for families affected by autism. Their goal is to empower these families by offering sponsorships and discounted rates toward the attendance of seminars and conferences. In the process of helping families, directly affected by autism, they intend to increase public awareness of this epidemic that is overwhelming our youth. Please visit their website for a free monthly newsletter.

MEDICAL HOME PROJECT - SEE UTAH COLLABORATIVE MEDICAL HOME PROJECT

MENTAL HEALTH, DIVISION OF
Address: 120 North 200 West, Room 209
Salt Lake City, UT 84103
Phone: (801) 538-3939
Purpose: The Utah Division of Substance Abuse and Mental Health is the State agency responsible for ensuring that prevention and treatment services for substance abuse and mental health are available statewide. If you, a friend, or family member is struggling with a mental health problem or a problem with alcohol, tobacco or other drugs there is help available. Hope and recovery are possible.

MIRACLE LEAGUE ASSOCIATION OF UTAH
Contact: Carol Synder or Matt Udy
Phone: (435) 615-1932
Phone: (866) 542-6576
Purpose: The Miracle League removes the barriers which keep mentally and physically disabled children off the baseball field and lets the experience the joy of America's favorite pasttime.

MOUNTAIN PLAINS REGIONAL CENTER (MPRRC)
Phone: (435) 752-0283
Website: www.rrgcnetwork.org/mprrc
Purpose: MPRRC assists state and local education agencies in developing quality programs and services for children with disabilities and their families.

MUSCULAR DYSTROPHY ASSOCIATION
Address: 4568 South Highland Drive, Suite 180
Salt Lake City, UT 84117
Phone: (801) 438-0280
Email: mdyson@mdausa.org

NATIONAL ABILITY CENTER
Address: 1000 Ability Way
Park City, UT 84098
Phone: (435) 649-3991
Website: www.discoverNAC.org
Purpose: The National Ability Center is committed to the development of lifetime skills for people of all ages and abilities by providing affordable outdoor sports and recreational experiences in a nurturing environment. The objective of these experiences is to build self-esteem, confidence and physical development, thereby enhancing active participation in all aspects of community life. The Center offers more than twenty different programs throughout the year with lessons, trips, camps and retreats. The Ability Center is home to the Ability Ski Team, the Golden Eagles sled hockey team, and the first adaptive bobsled team in the world.

NATIONAL ASSOCIATION FOR CHILD DEVELOPMENT (NACD)
Address: 549 25th St.
Ogden, UT 84401
Phone: (801) 621-8606
Website: www.nacd.org
Purpose: NACD provides neurodevelopmental evaluations and individualized programs for children and adults, updated on a quarterly basis. As a family-centered organization, NACD stresses parent training and parent implementation of the program. Support is provided to families through video reviews, e-mail and telephone sessions.

NAMI UTAH (NATIONAL ALLIANCE ON MENTAL ILLNESS)
Address: 450 South 900 East, Suite 160
Salt Lake City, UT 84102
Phone: (801) 323-9900
Toll-free: (877) 230-6264
Website: www.namiut.org
Purpose: NAMI is a nonprofit, grassroots, self-help, support and advocacy organization of consumers, families, and friends of people with severe mental illnesses, such as schizophrenia, schizoaffective disorder, bipolar disorder, major depressive disorder, obsessive-compulsive disorder, panic and other severe anxiety disorders, attention deficit/hyperactivity disorder, and other severe and persistent mental illnesses that affect the brain.

NATIONAL MULTIPLE SCLEROSIS SOCIETY, UTAH CHAPTER
Address: 2995 S. West Temple, Suite C
Salt Lake City, UT 84115
Phone: (801) 493-0113
Website: www.fightmsutah.org
Purpose: The Utah State Chapter strives to achieve its mission by helping people with MS in the following areas: emotional health, physical health, knowledge of MS, family and social support, independent living, long-term care, employment, and accessibility.

ONE BIG COOL BIB
Phone: (801) 701-0202
Website: www.onebigcoolbib.com
Purpose: Created by moms who know by experience just how messy kids can be at meal time... One Big Cool Bib was created to provide the coverage of a bib and an apron at the same time!

OPTIONS FOR INDEPENDENCE - NORTHERN UTAH CENTER FOR INDEPENDENT LIVING
Address: 1095 North Main Street
Logan, UT 84341
Phone: (435) 753-5353
Website: www.optionsind.org
Purpose: The mission of OPTIONS for Independence is to provide services to individuals with disabilities to facilitate their full participation in the community and raise the understanding of disability issues and access to the community.

OPTIONS FOR INDEPENDENCE - SATELLITE OFFICE - BOX ELDER COUNTY
Address: 862 South Main Street, Suite 9
Brigham, UT 84302
Phone: (435) 723-2171
Website: www.optionsind.org
Purpose: The mission of OPTIONS for Independence is to provide services to individuals with disabilities to facilitate their full participation in the community and raise the understanding of disability issues and access to the community.

PARENT P.R.E.P. (PRE-SCHOOL READINESS AND EDUCATION PROGRAM)
Contact: Stephanie Nilsen
Address: Clear Horizons Academy
5455 N. River Run Drive
Provo, UT 84604
Phone: (801)437-0490
Fax: (801) 801-437-0489
Email: stephanie@clearhorizonsacademy.org
Purpose: The Parent P.R.E.P. (Pre-School Readiness and Education Program) is a FREE program in Utah County funded by Autism Speaks and the Hurst Wood Education Foundation that aims to support parents of children with ASD, developmental delays, and other similar disorders by providing intensive, hands-on training to assist parents in meeting their child's individual, educational, and social needs.

PARENTS FOR CHOICE IN EDUCATION
Contact: Laura Anderson, Carson Smith Scholarship Outreach Coordinator
Address: 124 South 400 East, Suite 230
Salt Lake City, UT 84111
Phone: (801) 637-4111
Phone: (801) 532-1448
Website: www.choiceineducation.org
Purpose: Parents for Choice in Education (PCE) is dedicated to ensuring that every child has equal access to a quality education. PCE strives to empower parents, increase choice and promote innovative solutions to Utah's education challenges. PCE is very supportive of the Carson Smith Special Needs Scholarship and is dedicated to providing information and support to parents and educators.

PEOPLE FIRST OF UTAH
Address: 155 South 300 West, Suite 100
Salt Lake City, UT 84101
Phone: (801) 533-3965
Toll-free: (800) 323-8824
Website: www.utahddc.org
Purpose: People First is a self advocacy organization for adults with disabilities funded by the Utah Developmental Disabilities Council. There are over 20 groups located throughout Utah that have monthly educational meetings. Contact the number above for the group in your area.

PIONEER ADULT REHABILITATION CENTER (PARC)
Address: 485 PARC Circle
Clearfield, UT 84015
Phone: (801) 402-0950
Website: www.parc-ut.org
Purpose: PARC is a public, non-profit organization administered by the Davis School District that serves adults with disabilities. They offer employment solutions and training including: community job placements, HAFB jobs, supervised work, and work skills training.

PRADER-WILLI SYNDROME ASSOCIATION SUPPORT GROUP
Contact: Lisa Thornton
Phone: (801) 582-0998
Website: www.upwsa.org
The mission of the Utah Prader-Willi Association is to provide families and professionals with a network of support, resources and information, to promote awareness of the syndrome and raise funds that will directly benefit Utahan's with PWS. In addition, the association facilitates opportunities to congregate pro-active individuals who can pool talents, resources, ingenuity and vision to produce more options, increase quality of life, and create a brighter future for individuals with PWS.

PRIMARY CHILDREN'S MEDICAL CENTER (PCMC)
Address: 100 North Medical Drive
Salt Lake City, UT 84113
Phone: (801) 662-1000 (operator)
Toll-Free: (800) 662-1000
Purpose: The mission of PCMC is to provide quality and comprehensive pediatric medical services.

PRIMARY CHILDREN'S MEDICAL CENTER REHABILITATION SERVICES
Address: 100 North Medical Drive
Salt Lake City, UT 84113
Phone: (801) 662-4910
Website: http://intermountainhealthcare.org
Purpose: PCMC Rehabilitation offers diagnostic testing and treatment for children. They serve children with: injuries and illness; physical challenges; speech, language, and cognitive delays; developmental delays; hearing loss; and other conditions that affect the daily activities most children enjoy. Each therapy program is planned to meet the unique needs of each child.

PROJECT GAIN
Address: 250 E. 1850 South
Salt Lake City, UT 84112
Phone: (801) 581-8754
Website: www.accessgolf.org
Purpose: Project GAIN (Golf: Accessible and Inclusive Networks) Golf professionals, rehabilitation specialists, recreation professionals as well as volunteers and mentors implement a rigorous program of golf instruction and social development for a wide variety of people with disabilities. Project GAIN organizes and conducts community based programs that introduce people with disabilities to the game of golf.

PTA, PARENT TEACHER ASSOCIATION - SEE UTAH CONGRESS OF PARENT TEACHER ASSOCIATION

RISE, INC.
Salt Lake City Address: 7575 S. 900 E.
Midvale, UT 84047
Address: 1358 W. Business Park Drive
Orem, UT 84058
Phone: 801-373-1197
Website: www.riseservicesinc.org
Purpose: RISE is a nonprofit organization that specializes in home and community-based support services for children and adults with developmental and other disabilities, children with mental health challenges, and aging adults. We create opportunities for and with the people we serve, their families, and for the men and women who work in the direct care profession. RISE has a network of hundreds of Direct Support Professionals working with people with disabilities and their families to help create and sustain the lives they want to live in their homes, families, and in the community. This includes supporting people in daily living activities, providing companionship, accompanying them to community events, teaching them skills, supporting or customizing employment, foster parenting, supporting or customizing employment and much more. Outstanding specialists who provide behavior, counseling, therapy, medical, and other services are also part of our team. Levels of support are tailored to people's needs and service hours range from a few hours a month to 24 hours a day.

RED ROCK CENTER FOR INDEPENDENCE
Address: 515 West 300 North, #A
St. George, UT 84770
Phone: (435) 673-7501
Website: www.rrci.org
Purpose: Red Rock Center for Independence assists people with disabilities to live and participate independently.

REHABILITATION SERVICES, DIVISION OF
Address: Utah State Office of Rehabilitation
250 East 500 South
Salt Lake City, UT 84111-3204
Phone: (801) 538-7530
Purpose: Provides vocational rehabilitation services for individuals with a disability to bring about gainful employment.

RELAY UTAH - 711
Phone: 711
Toll-free: (800)676-3777 (Customer Service)
Toll-free: (800) 346-4128 (TTY)
Toll-free: (888) 735-5906 (Voice)
Website: www.relayutah.gov
Purpose: The Relay Utah service was initiated in 1988 as one of the first Relay services established in the United States. Housed under the umbrella of the Public Service Commission, Relay Utah provides access to hearing assistive equipment and telephone relay services, through Sprint, to allow Utah citizens who are deaf, hard of hearing or speech disabled more efficient communication.

SALT LAKE ADVOCACY AND COMMUNITY TRAINING - ACTIVE SOLUTIONS FOR PEOPLE WITH DISABILITIES
Address: 3098 South Highland Drive, Suite 355
Salt Lake City, UT 84106
Phone: (801) 412-3798
Purpose: Beginning as the Arc of Salt Lake County in 1956, Salt Lake ACT provides unique individualized services for people with disabilities. Our mission is "Creating circles of support for people with disabilities through programming, collaboration, advocacy, education and support coordination." To fulfill our mission we provide private support coordination, mental health counseling and training programs focused on healthy relationships with emphasis on abuse prevention. For those on waiting lists for government funded programs, Salt Lake ACT provides service brokering and individual support services to link people to helpful community resources. In addition we run Singles Mingles, an adult activity and socialization program, an annual Labor of Love Holiday Gift Program and Recreation Day, an annual picnic and activity fair.

SALT LAKE COUNTY PARKS AND RECREATION - ADAPTIVE RECREATION
Address: 8446 S. Harrison St.
Midvale, UT 84047
Phone: (801) 561-0075
Website: http://www.recreation.slco.org/adaptive
Purpose: Salt Lake County Parks and Recreation Adaptive Program offers a variety of programs and activities for people with disabilities ages 5 years though adulthood. The Mission of the adaptive program is to enhance the quality of life for individuals with challenges by facilitating an appropriate leisure life-style through positive recreation and education experiences regardless of sex, race, creed, or ability. Programs include socialization activities, various sports, and summer day camps.

SHRINER'S HOSPITAL FOR CHILDREN -- INTERMOUNTAIN
Address: Fairfax Road at Virginia Street
Salt Lake City, UT 84103-4399
Phone: (801) 536-3500
Website: www.shrinershospitals.org
Purpose: The Intermountain Shriners Hospital is a 40-bed pediatric orthopedic hospital providing comprehensive orthopaedic care to children at no charge.

SOCIAL SECURITY ADMINISTRATION (SSA)
Address: 202 West 400 South
Salt Lake City, UT 84101
Phone: (801) 524-4115
Website: www.ssa.gov
Purpose: Social Security Disability/SSI. Their mission is to advance the economic security of the nation's people through compassionate and vigilant leadership in shaping and managing America's Social Security programs.

SPECIAL FOCUS PHOTOGRAPHY
Address: 6137 Rainsborough Road
Salt Lake City, UT 84121
Phone: (801) 897-9766
Website: www.specialfocusphotography.org
Purpose: The mission of Special Focus Photography is to provide professional portrait services specifically catering to individuals with disabilities. As a mother of a son with Autism, the photographer knows that "one size does not fit all". Pictures are often very difficult and cause anxiety for everyone involved. It should be fun! They make every effort to adapt to the individual needs of each client and bring understand that not only puts the "model" at ease, but parents as well.

SPECIAL NEEDS RESOURCE PROJECT
Website: www.snrproject.com
Purpose: The Special Needs Resource Project (SNRP) provides a basic guide for parents of children with chronic health issues, disabilities and special needs. This site is designed to help you get a jump-start in your search for helpful information and resources. Every situation is unique. Our aim is to help you learn the basic skills you'll need to obtain the specific resource information, equipment, and services your child and family needs. Though focused on children ages 0-22, most of the information we offer is applicable to adults as well.

SPECIAL OLYMPICS UTAH
Address: 243 East 400 South, Suite 111
Salt Lake City, UT 84111
Phone: (801) 363-1111
Toll-free: (800) 722-1589
Website: www.sout.org
Purpose: Special Olympics is an international program that provides year-round sports training and athletic competition in a variety of Olympic-type sports for more than one million children and adults with intellectual disabilities. Special Olympics Utah, a chapter of Special Olympics, was founded in 1969 and serves more than 2,000 athletes statewide.

SPECTRUM ACADEMY (CHARTER SCHOOL)
Address: 575 Cutler Drive
North Salt Lake, UT 84054
Website: www.spectrumcharter.org
Purpose: The Spectrum Academy implements research-based teaching methods to educate children with Asperger's Syndrome, Autism, communication disorders, and sensory integration disorders.

SPINA BIFIDA ASSOCIATION OF UTAH (SBAU)
Address: Ilene Hall - President
61 Buffalo Road
Farmington, UT 84025
Phone: (801) 663-3120
Website: www.sbautah.com
Purpose: The mission of the SBAU is to promote the prevention of spina bifida and to enhance the lives of all affected.

SPLORE
Address: 880 East 3375 South
Salt Lake City, UT 84115
Phone: (801) 484-4128
Website: www.splore.org
Purpose: SPLORE is a Utah-based non-profit organization that is dedicated to enriching the lives of children and adults with disabilities and special needs through outdoor recreation. Some of the programs SPLORE provides include: river rafting, rock climbing, canoeing, snowshoeing, Nordic skiing, dog sledding, and other specialized programs. SPLORE can tailor a half-day, full-day, or multi-day program for individuals or groups at affordable rates or at a scholarship rate. One of SPLORE's new programs this year is Rock On! which is an indoor rock climbing program that specifically caters towards children with Autism and Aspergers syndrome. Parents and friends are also welcome to attend these programs.

TEN THOUSAND VILLAGES
Address: 1941 South 1100 East
Salt Lake City, UT 84106
Phone: (801) 485-8827
Website: www.villagesutah.org
Purpose: Since 1946 Ten Thousand Villages has supported the work of literally tens of thousands of artisans in over 30 countries in Asia, Africa, Latin America and the Middle East, making us one the largest fair trade organizations in North America. Working with more than 100 artisan groups, we purchase fine pieces from craftspeople with whom we have longstanding, nurturing relationships... helping to bring dignity to their lives.

TOPSOCCER IN UTAH
Utah Chairperson: Sarah W. Smith
Email: sarah.w.smith@utah.edu
Website: www.utahyouthsoccer.net/topsoccer.html
Purpose: TOPSoccer is UYSA's outreach program for soccer. The program is designed to bring the opportunity of learning and playing soccer to any boy or girl, ages 4 - 19, who has a mental or physical disability, to provide meaningful learning, development, and physical participation opportunities to these young athletes through the game of soccer. There are thousands of children with different abilities who need, and can be provided the opportunity to play soccer through TOPSoccer.

TOURETTE SYNDROME ASSOCIATION - UTAH
Toll-free: (866) 274-0700
Website: www.tsa-utah.org
Purpose: Their mission is to identify the cause of, find the cure for and control the effects of this disorder. They develop and disseminate educational material to individuals, professionals, and to agencies in the fields of health care, education and government; coordinates support services to help people and their families cope with the problems that occur with TS; funds research that will ultimately find the cause of and cure for TS and, at the same time, lead to improved medications and treatments.

TRI-COUNTY INDEPENDENT LIVING CENTER
Address: P.O. Box 428
2726 Washington Boulevard
Ogden, UT 84402
Phone: (801) 612-3215
Toll-Free: (866) 734-5678
Purpose: Their mission is to assist persons with disabilities in achieving greater independence by providing services and activities which enhance independent living skills and promote public understanding, accommodation, and acceptance of their rights, needs, and abilities.

TURN COMMUNITY SERVICES
Salt Lake Office Address: 850 South Main Street
Salt Lake City, UT 84101
Phone: (801) 359-8876
(866) 359-TURN
Cedar City Office Address:
295 South 200 East
Cedar City, UT 84720
Phone: (435) 559-1757
Purpose: TURN Community Services provides a variety of programs for individuals with developmental disabilities including; residential, supported employment, day training and diversion programs.

UCARE
Address: 120 North 200 West
North Salt Lake, UT 84054
Phone: (801) 538-4608
Website: www.ucare.utah.gov
Purpose: UCARE provides help for caregivers, seniors, people with disabilities, human resource personnel, and medical professionals. Their website will help you find answers to questions such as: What is long-term care? How do I choose a long-term care option? What resources are available in Utah and nationally?

UREAD
Address: 12691 South 2580 West
Riverton, UT 84065
Phone: (801) 254-3332
Purpose: UREAD is a coalition of concerned parents and educators who are dedicated to addressing the needs of the children in Utah who have the learning difference of Dyslexia. It is only through a combined effort of every one of us that our mission and goals can be accomplished. Their mission is that they are dedicated to ensuring that every Utah student with the learning difference of Dyslexia will receive scientifically based instruction and services consistent with his/her needs.

US AUTISM AND ASPERGER ASSOCIATION, INC. (USAAA)
Address: P.O. Box 532
Draper, UT 84020-0532
Phone: (801) 649-5752
Website: www.usautism.org
Purpose: USAAA''s mission is to enhance the quality of life of individuals and their families/caregivers touched by autism spectrum disorders by providing educational and family support through conferences/seminars, and published and electronic mediums. USAAA distributes information with regard to biomedical treatments/behavioral and developmental therapies, and research to parents, practitioners, students, and teachers who are associated with the autism and Asperger's Syndrome communities.

USIMAC (UTAH STATE INSTRUCTIONAL MATERIALS ACCESS CENTER)
Address: 3098 S. Highland Drive, Suite 103 Highland Park Plaza
Salt Lake City, UT 84106
Phone: (801) 464-2082
Fax: (801) 464-2076
Email: info@usimac.org
Purpose: The Utah State Instructional Materials Access Center (USIMAC) has been established to aid local education agencies in meeting the requirements of the Individuals with Disabilities Education Improvement Act of 2004 (IDEA) for the provision of accessible instructional materials. The USIMAC offers opportunities for students with print disabilities to gain increased access to the general curriculum by making available instructional materials in alternate formats. Our mission is to partner with local educational agencies in securing accessible textbooks and core curriculum materials, in specialized formats, for qualifying students with print disabilities.

UTAH ADAPTIVE RECREATION NETWORK (UARN)
Address: Alex Johnson
880 East 3375 South
Salt Lake City, UT 84106
Phone: (801) 484-4128
Website: www.splore.org
Purpose: Utah Adaptive Recreation Network is a collaborative body of six different organizations in Utah that provide recreational opportunities for children and adults with disabilities and special needs. UARN is a coordinated effort of: National Ability Center, SPLORE, Common Ground, Project Gain, Camp K, and Salt Lake Parks and Recreation. They are trying to raise awareness of recreational programs available to people with disabilities and their families. Contact information for each of the collaborating organizations can be found in this book.

UTAH ASSISTIVE TECHNOLOGY FOUNDATION
Address: 6835 Old Main Hill
Logan, UT 84322-6835
Toll-free: (800) 524-5152
Website: www.uatf.org
Purpose: A non-profit organization that helps individuals with disabilities live more productive and independent lives by providing zero and low interest loans to purchase assistive technology devices and services.

UTAH ASSISTIVE TECHNOLOGY PROGRAM
Address; 6855 Old Main Hill
Logan, UT 84322-6855
Phone: (435) 797-3824
Toll-free: (800) 524-5152
Website: www.uatpat.org
Purpose: The Utah Assistive Technology Program (UATP) gets assistive technology (AT) into the hands of people who need it.

UTAH AUTISM RESEARCH PROJECT
Address: 650 Koma Drive Suite 206
Salt Lake City, UT 84108
Phone: (801) 585-9098
Website: http://utahautismresearchproram.genetics.utah.edu
Purpose: The Utah Autism Research Program conducts research into various possible causes of autism spectrum disorders. Some of their current projects include: genetic studies utilizing the unique genealogical resources available in Utah and studies of the immune system in autism. They are also expanding their diagnosis center.

UTAH AUTISM FOUNDATION
Website: http://www.utahautismfoundation.org/
Purpose: The Utah Autism Foundation is a nonprofit organization formed to identify and support research on both a local and national level into the cause, prevention, and potential treatment of autism.

UTAH CENTER FOR ASSISTIVE TECHNOLOGY (UCAT)
Address: 1595 West 500 South
Salt Lake City, UT 84104
Phone: (801) 887-9539
Website: www.usor.ut.gov:81/ucat
Purpose: UCAT is a state government agency that provides assistive technology services to anyone in Utah. They help people with disabilities and their caregivers select, acquire, and learn to use assistive technology devices that can help them cope with the functional limitations caused by their disabilities.

UTAH COLLABORATIVE MEDICAL HOME PROJECT
A Project of Children with Special Health Care Needs
Address: PO Box 144610
Salt Lake City, UT 84114-4610
Phone: (801) 584-8584; (800) 829-8200 (toll-free)
Website: www.medhomeportal.org
Purpose: The Utah Collaborative Medical Home Project at the Children with Special Health Care Needs provides technical support to physicians across Utah to become medical homes for chronically ill and disabled children. A medical home is a family-centered approach to providing health care by professionals, parents, and allied health care workers acting as partners to identify and access all the medical and non-medical services needed for children to reach their potential. For more information call or visit the website.

UTAH CONGRESS OF PARENTS AND TEACHERS ASSOCIATION (PTA)
Address: 5192 South Greenpine Drive
Salt Lake City, UT 84123
Phone: (801) 261-3100
Toll-free: (866) PTA UTAH
Website: www.utahpta.org
Purpose: The Utah PTA will help every child reach full potential and will: Advocate: Support and speak on behalf of children and youth; Involve: Encourage positive involvement in all facets of a child's life; Develop: Assist in developing skills to raise and protect children and youth.

UTAH DEVELOPMENTAL DISABILITIES COUNCIL
Address: 155 South 300 West, Suite 100
Salt Lake City, UT 84101
Phone: (801) 533-3965
Toll-free: (800) 333-8824
Website: www.utahddc.org
Purpose: The mission of the Utah DD council is to be the state's leading source of critical innovative and progressive knowledge, advocacy, leadership and collaboration to enhance the life of individuals with developmental disabilities.

UTAH DOWN SYNDROME FOUNDATION (UDSF)
Address: PO Box 675
Salt Lake City, UT 84110
Toll-free: (877) 499-UDSF (8373)
Website: www.udsf.org
Purpose: A non-profit organization established in 1977, the Utah Down Syndrome Foundation provides outreach, training, counseling, support, education, information, and activities for individuals with Down syndrome, their parents and families, and the community. With 14 chapters located throughout the state operating under the 501 © 3 umbrella of the UDSF State Board, this volunteer organization has grown to become Utah's largest support provider for the Down syndrome community. The largest and most well-known community awareness activity supported by UDSF is the annual Buddy Walk. Local chapters organize "walks" within their communities and partner with families and businesses to raise money. That money remains in the chapters and is spent on various types of activities throughout the year in support of individuals with Down syndrome. To find a chapter in your area, receive a bi-monthly newsletter called the Advocate, request a copy of the Newborn Booklet for new parents of infants born with Down syndrome, or to find out more about Down syndrome, call the toll free number listed above or log on to the UDSF website.

UTAH FAMILY PARTNERSHIP NETWORK
Address: 2500 South State Street, Room D120
Salt Lake City, UT 84115
Phone: (801) 646-4608
Website: www.ufpn.org
Purpose: The Utah Family Partnership Network helps families and schools come together for student success. Their centers contain hundreds of resources on parenting, discipline, early literacy, helping with homework, dealing with learning disabilities, understanding your child, plus educational and health information.

UTAH FAMILY VOICES - HEALTH INFORMATION, EDUCATION AND SUPPORT
At the Utah Parent Center
Phone: (801) 272-1068
Toll-free: (800) 468-1160
Website: www.familyvoices.org
At the Bureau of Children with Special Health Care Needs
Phone: (801) 584-8236
Toll-free: (800) 829-8200, option 1
Website: www.familyvoices.org
Purpose: Utah Family Voices is a national grassroots organization of families who have children and youth with special needs. We are committed to strong collaborative partnerships between families and health care professionals to improve the systems of supports and services for our children. They provide information, training and family-to-family support around health and community services to families throughout the state.

U-FIT SPECIAL PHYSICAL ACTIVITY PROGRAM
Address: 250 South 1850 East, Room 241
Salt Lake City, UT 84112
Phone: (801) 587-9713
Website: www.health.utah.edu/outreach/ufit.html
Purpose: The U-FIT Special Physical Activity Program provides fun, noncompetitive physical activities that will help children and youth with disabilities to reach individual goals. Skilled volunteers help the participants build friendships, increase self-esteem, improve motor skills and levels of physical fitness, and have fun in a nurturing environment. The goals and needs of the ach participant's family is key to the success of the U-FIT program. The program is family centered and family-friendly, meeting needs as diverse as those who take part. Family members help develop the goals for each participant.
Contact: Sarah W. Smith
Email: sarah.w.smith@utah.edu
Phone: (801) 859-2128

UTAH HANDS AND VOICES
Contact: Mindi Allen
Phone: (801) 266-5272
Purpose: Support group for parents with children who are deaf and hard of hearing.

UTAH HOME EDUCATION ASSOCIATION
Phone: See the website for telephone contacts in your area.
Website: www.uhea.org
Purpose: The Utah Home Education Association has been established to support the education of children in the home as a viable alternative to the existing public and private educational system. Please visit their website for contacts in your area.

UTAH INDEPENDENT LIVING CENTER, INC.
Address: 3445 South Main Street
Salt Lake City, UT 84115-4453
Phone: (801) 466-5565(Voice); (801) 466-9910 (TTY); (435)843-7353 - Tooele Outreach Branch
Purpose: To assist persons with disabilities in achieving greater independence by providing services and activities which enhance independent living skills and promote the public understanding, accommodation, and acceptance of their rights, needs and abilities.

UTAH PARENT CENTER
Address: 2290 East 4500 South, Suite 110
Salt Lake City, UT 84117-4428
Phone: (801) 272-1051; (800) 468-1160 (toll-free)
Website: www.utahparentcenter.org
Purpose: The Utah Parent Center (UPC) is a statewide non-profit organization founded in 1984 to provide training, information, referral, and assistance to parents of children and youth with ALL disabilities: physical, mental, learning and emotional. Staff at the Center are primarily parents of children and youth with disabilities who carry out the philosophy of PARENTS HELPING PARENTS.

UTAH SCHOOL NURSES ASSOCIATION
Phone: (801) 703-3369
Website: www.utsna.org
Purpose: "The mission of the Utah School Nurses Association is to protect and improve the health and safety of children and families by supporting comprehensive school health nursing services. These programs provide prevention, detection and resolution of health concerns, thereby improving educational achievement and enhancing the quality of life."

UTAH SCHOOLS FOR THE DEAF AND THE BLIND
Address: 742 Harrison Boulevard
Ogden, UT 84404-5298
Phone: (801) 629-4700 (Voice); (801) 629-4701 (TTY); (800) 990-9328 (toll-free)
Website: www.usdb.org
Purpose: Their purpose is to provide consultation, resources, and direct education services to children from birth through age 21 with hearing and/or visual impairments and their families. Family support specialists can be contacted through the main number listed above.

UTAH STATE OFFICE OF EDUCATION - SPECIAL EDUCATION SERVICES
Address: 250 East 500 South
PO Box 144200
Salt Lake City, UT 84111-4200
Phone: (801) 538-7587
Website: www.schools.utah.gov/sars
Purpose: Their purpose is to provide support to empower students with disabilities ages 3-21.

UTAH STATE OFFICE OF REHABILITATION
Address: 926 Baxter Drive
South Jordan, UT 84095
Phone: (801) 446-2581
Website: www.usor.utah.gov
Purpose: Their purpose is to assist eligible individuals in obtaining employment and increasing their independence.

WORK ABILITY UTAH
Address: Utah Department of Health, Health Care Financing c/o USOR - Judy Ann Buffmire Building
1595 West 500 South
Salt Lake City, UT 84104
Phone: (801) 887-9529
Toll-free: (877) 246-9675
Website: www.workabilityutah.org
Purpose: The goal of Work Ability Utah is to create a comprehensive system of work incentives and supports that will increase employment and healthcare outcomes for individuals with disabilities. This is accomplished through interagency collaboration, employer development, and outreach to consumers, families, providers and agency personnel. Activities include information and referral services, publicity campaigns, workshops and fairs for both individuals with disabilities and the business community.




National Resources

ABLEDATA
Objective information about assistive technology products and rehabilitation equipment available from domestic and international sources.
http://www.abledata.com/

AccessLife.com
Provides relevant, up-to-the-minute news and sports, travel information, peer-support, and medical products in an all-inclusive on-line destination for individuals in the disability community.
http://accesslife.com

ADAPT: Americans Disabled for Attendant Programs Today
Legislative proposals, news releases, organization newsletter and advocacy information related to community inclusion and community supports.
http://www.adapt.org/

Administration on Developmental Disabilities
Federal agency devoted to the needs and issues of people with developmental disabilities and their families. Site includes program information, related links and research results.
http://www.acf.dhhs.gov/programs/add

American Association for Klinefelter Syndrome Information and Support
Information and support for Klinefelter Syndrome
http://www.aaksis.org

American Association on Intellectual and Developmental Disabilities
News, information, white papers and position statements.
http://www.aamr.org/

American Eugenics Movement
Comprehensive archive of images, documents and exhibits related to the American Eugenics Movement.
http://www.eugenicsarchive.org/eugenics/

The Arc of the US:
Family Resource Guide
http://www.thearc.org/familyguide/generic.doc

Association of University Centers on Disabilities
Network of interdisciplinary Centers advancing public policy and practice for and with individuals with developmental and other disabilities, their families, and communities. Includes policy information, legislative testimony, special projects and resources.
http://www.aucd.org/

The Autism Society
Information and support for improving the lives of all affected with Autism
http://www.autism-society.org

Axis Disability Rights
Links to disability sites and resources related to inclusive education, employment and relationships, compiled by consultants Norman Kunc and Emma Van der Klift.
http://www.normemma.com/

Bazelon Center for Mental Health Law
Legal advocacy for the civil rights and human dignity of people with mental disability.
http://www.bazelon.org/

Beyond Affliction: The Disability History Project
Four-hour radio series focusing on people with disabilities and their families since the beginning of the 19th century.
http://iris.npr.org/programs/disability/index.html

CADRE - Consortium for Appropriate Dispute Resolution in Special Education
Encourages the use of mediation and other collaborative strategies to resolve disagreements about special education and early intervention programs.
http://www.directionservice.org/cadre

CENSUS: Disability Census Data
Census statistics related to Americans with disabilities.
http://www.census.gov/hhes/www/disable.html

Center for Self-Determination
Information on principles of self-direction and services on training, education and consulting.
http://www.centerforself-determination.com

Center for Disease Control: National Center on Birth Defects and Developmental Disabilities
Background information on developmental disabilities, as well as links to websites and related resources.
http://www.cdc.gov/ncbddd/dd/

Center for Health Services Research and Policy (George Washington University Medical Center)
Information, research and white papers related to legal, health care and work-related issues for children or adults with disabilities.
http://www.gwhealthpolicy.org/disabilities.htm

Center for Human Policy - Disability Studies for Teachers
Lesson plans and materials designed to help teachers integrate disability studies into social studies, history, literature, and related subjects in grades 6-12. The plans and materials also can be adapted for use in postsecondary education.
http://www.disabilitystudiesforteachers.org/

Center for Independent Living: Mission and History
History of the Center for Independent Living at the University of California, Berkeley, a national leader in helping people with disabilities live independently and become more productive.
http://www.cilberkeley.org/history.htm

Center for Neighborhood Technology
Information, resources and programs related to urban community development.
http://www.cnt.org/

Center on Human Policy (Syracuse University)
Policy and research studies promoting inclusive communities and opportunities for people with disabilities.
http://soeweb.syr.edu/thechp/

Centers for Medicare and Medicaid Services
Comprehensive information on Medicare, Medicaid and SCHIP, including coverage, laws, regulations and extensive resource section.
http://cms.hhs.gov

Chronology of the Disability Rights Movement
Chronological overview of the Disability Rights Movement in the United States, from 1817 through 1996.
http://www.sfsu.edu/~hrdpu/chron.htm

Circles Network
UK-based organization that provides unique support and new possibilities for disabled people who have been excluded from, or isolated within, our society. We offer them the opportunity to become full and equal members of society, to develop their talents and potential and to enrich the lives of others as well as their own. This is done primarily through the setting up of circles of support, and we also run specific projects for particular areas of need.
http://www.circlesnetwork.org.uk/

The Community Imperative
In 1979, the Center on Human Policy at Syracuse University wrote The Community Imperative, a declaration supporting the right of all people with disabilities to community living. The Center has reissued The Community Imperative in 2000 and invites endorsements from individuals and organizations.
http://soeweb.syr.edu/thechp/community_imperative.html

Council for Exceptional Children
The largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.
http://www.cec.sped.org/

The Council on Quality and Leadership
An international non-profit organization dedicated to advancing the quality of services and supports to people with disabilities. This is accomplished through its accreditation services, training programs, and research division.
http://www.thecouncil.org/

Dan Keplinger
Star of the documentary that won an Oscar for Best Documentary.
http://users.erols.com/kinggimp/

Department of Labor
Information on employment for employers and employees.
http://www.dol.gov/

Dimenet Network
National computer networking system created to increase information sharing among individuals involved in the disability rights and independent living movements.
http://www.dimenet.com

DirectAbility.Com
THE guide to resources for Minnesotans with disabilities and the people who live, work and play with us every day.
http://www.directability.com

Disability Advocacy: Suite 101
Information on disability rights and advocacy, featuring recent articles, discussion groups and resources.
http://www.suite101.com/welcome.cfm/disability_advocacy

Disability Grapevine
Daily online newspaper, delivered via e-mail, devoted to disability news and commentary. Presented by the Institute for Cultural Research for People with Disabilities (ICRPWD)
http://www.disabilitygrapevine.com/

The Disability History Museum
The Disability History Museum has no bricks and mortar. The virtual museum is home to a searchable, theme-based digital collection of documents and images related to disability history in the United States. Artifacts are drawn from public and private collections around the country.
http://www.disabilitymuseum.org/

Disability Resources Monthly WebWatcher: History of Disability
Online review of resources and web sites related to the history of people with disabilities.
http://www.disabilityresources.org/HISTORY.html

Disability Resources on the Internet
Guide to disability resources on the Internet, organized by site popularity, alphabet, type of disability and state.
http://www.disabilityresources.org/

Disability Rights Activist
Compilation of information and resources for activists and self-advocates on a variety of issues related to disability rights.
http://disrights.org/

The Disability Rights and Independent Living Movement
The UC Berkeley's website on the Disability Rights and Independent Living Movement includes a collection of primary sources exploring the social and political history of the disability movement from the 1960s to the present. Includes oral history.
http://bancroft.berkeley.edu/collections/drilm/

Disability Rights Education and Defense Fund
National law and policy center dedicated to protecting and advancing the civil rights of people with disabilities through legislation, litigation, advocacy, technical assistance, and the education and training of attorneys, advocates, persons with disabilities, and parents of children with disabilities. Includes legal cases, links, and resources.
http://www.dredf.org

Disability Social History Project
A community history project that outlines important events in disability history, topical exhibits, special projects and resources.
http://www.disabilityhistory.org/

Disability Solutions
Bi-monthly newsletter containing information for self-advocates, parents, family members and professionals.
http://www.disabilitysolutions.org/

Disability Statistics Center
The purpose of the Disability Statistics Center is to produce and disseminate statistical information on disability and the status of people with disabilities in American society, and establish and monitor indicators of how conditions are changing over time to meet their health, housing, economic and social needs.
http://www.dsc.ucsf.edu

Disability Studies Online Magazine
List of books and resources for educators.
http://www.disabilitystudies.com/history.htm

DisabilityInfo.gov
Web site for centralized information on federal government disability issues.
www.disabilityinfo.gov

DisabledPerson.com
"... an online magazine that is geared specifically towards the Disabled Person. Not just a resource site but a magazine. One with articles about the human side of your disabilities."
http://www.disabledperson.com

DO-IT Program
"Disabilities, Opportunities, Internetworking, and Technology."
http://www.washington.edu/doit/

Down Syndrome on the Internet
Down Syndrome-related links.
http://www.downsyndrome.com/

DSS Quarterly
Scholarly articles and reviews related to human and social aspects of disabilities and chronic illness to promote inclusion of persons with disabilities in society.
http://www.cds.hawaii.edu/DSQ/

EDLAW Center
Assistance for attorneys representing parents of children with disabilities who are seeking free, appropriate public education for their children.
http://www.edlaw.net/

Education Law Resource Center
The Center provides information to help parents and educators to better understand legal requirements and meet individual student needs. Topics include special education, physical restraints, and the No Child Left Behind law.
http://www.edlawrc.com

Education Resources Information Center (ERIC)
Access to more than 1 million pieces of information related to education of individuals with developmental disabilities or those who are gifted. National network co-sponsored by U.S. Department of Education and Office of Educational Research and Improvement.
http://www.eric.ed.gov

Education Week on the Web
Online compilation of timely articles on education in America, including special education section.
http://www.edweek.org/

Enabled Online
Online magazine highlighting people working in and for the disability community, including personal stories and profiles.
http://www.enabledonline.com/

Empowerment Zone
Information, ideas and resources related to accessible housing, education and health care, travel, civil rights, employment, assistive technology, self-determination, legal assistance and other related topics.
http://www.empowermentzone.com/

Family and Advocates for Parental Education/FAPE
The Families and Advocates Partnership for Education (FAPE) project, funded by the U.S. Department of Education, was created to improve the educational outcomes for children with disabilities.
http://www.fape.org

Family Center on Technology and Disability
Information on assistive technology, legal issues, personal stories and links to useful sites.
http://fctd.ucp.org/

Family Village: A Global Community of Disability-Related Resources
Comprehensive site containing disability-related resources, discussion groups and other information.
http://www.familyvillage.wisc.edu/index.html

Family Village: Disability History
Links to disability history resources.
http://www.familyvillage.wisc.edu/general/history.html

Fathers Network
Information and resources for fathers and families raising children with developmental disabilities and special health issues. Includes news, personal stories, and family resources.
http://www.fathersnetwork.org/page.php?page=554&

The Federal Register
Official Federal Government information.
http://www.gpoaccess.gov

Federal Resource Center for Special Education
Nationwide technical assistance network responding to the needs of students with disabilities, especially students from under-represented populations. Addresses major federal legislation, links to federal agencies administering special education programs, IDEA and related publications.
http://www.dssc.org/frc/

Federal Resources for Educational Excellence
Hundreds of education resources supported by agencies across the US Federal government.
http://www.ed.gov/free/

Federal Transit Administration
Information on federal transportation programs related to individuals with disabilities.
http://www.fta.dot.gov/CCAM/www/index.html

Fedworld Website
Offers a data search component of federal agencies, including the IRS and Environmental Protection Agency.
http://www.fedworld.gov/

FirstGov.gov
The U. S. Government's official web portal offers access to all federal web sites and sponsored resources as well as current statistics, research and information.
http://www.firstgov.gov/

Gentle Teaching
Non-violent approach to teaching children and adults with special needs.
http://www.gentleteaching.nl/

Great Lakes Area Resource Center
Organization working to improve special education offerings in nine states. Includes information on current topics, resource list.
http://www.glarrc.org/

Healthy People 2010
Health care information and publications that challenge individuals, communities, and professionals to take specific steps to ensure good health is enjoyed by everyone.
http://www.healthypeople.gov

History of Special Education
Overview of the history of special education from the ERIC Clearinghouse on Information Center on Disabilities and Gifted Education (ERIC EC).
http://ericec.org/faq/spedhist.html

Holocaust Museum: Treatment of the Handicapped
Brochure describing Nazi treatment of people with disabilities from 1933-1945.
http://www.holocaust-trc.org/hndcp.htm

HUD: Housing and Urban Development-Housing for People with Disabilities
Home purchase information specifically related to people with disabilities, including laws and regulations, HUD resources and general information.
http://www.hud.gov/groups/disabilities.cfm

IDEA: Individuals with Disabilities Education Act
Information and resources related to IDEA.
http://www.ed.gov/offices/OSERS/Policy/IDEA/index.html

IDEA Practices
Information, tips and ideas related to IDEA and its implementation
http://www.ideapractices.org/

Image Archive on the American Eugenics Movement
Key events, persons and social conditions contributing to development of eugenics - the effort to breed better humans. Presented through essays and images.
http://www.eugenicsarchive.org/eugenics/

Inclusion Daily Express
Online newsletter that covers current disability rights, self-determination, and community inclusion issues around the world.
http://www.inclusiondaily.com/

Inclusion of Students with Special Needs
Site for teachers and parents advocating for an inclusive school environment. Includes information on system change, staff development, teaching and learning in an inclusive environment, collaboration, standards and assessments. Links to related sites.
http://www.newhorizons.org/spneeds_intr.html

Inclusion Press
Central resource for publications, videos and other information related to community inclusion.
http://www.inclusion.com/

Inclusive Community Democracy
Links and resources related to school inclusion and community building.
http://www.coe.wayne.edu/CommunityBuilding/

Independent Living Research Utilization
Information on Olmstead decision and its application, ADA, managed care, health issues and international disability issues. Includes resources, related sites, and discussion groups.
http://www.ilru.org/

Individuals with Disabilities Education Improvement Act of 2004 (IDEA 2004)
The Individuals with Disabilities Education Improvement Act of 2004 (IDEA 2004) aligns IDEA with the No Child Left Behind Act (NCLB), helping to ensure equity, accountability and excellence in education for children with disabilities. The Office of Special Education Programs (OSEP) has developed 19 topic briefs related to high-interest areas of IDEA 2004, including all relevant statutory language around that topic, the citations and cross-references to other, related briefs.
http://www.ed.gov/policy/speced/guid/idea/idea2004.html

Institute on Community Integration (University of Minnesota)
Resources and information related to disability issues, organized by key project and issues. Includes related resources and websites.
http://ici.umn.edu/default.html

Institute for Policy Research (Northwestern University)
Research on significant public policies related to social sciences.
http://www.northwestern.edu/ipr/

Job Accommodation Network (JAN)
Information related to job accommodations, the ADA and employability of people with disabilities.
http://janweb.icdi.wvu.edu/

Justice For All
E-mail notification of action alerts related to Congressional legislative issues impacting people with disabilities.
http://www.jfanow.org/

Kids As Self Advocates: Disability History and Culture
A national, grassroots network of youth with disabilities and needs (and our friends) created to spread helpful, positive information among our peers to increase knowledge around various issues.
http://www.fvkasa.org/culture.asp

LSU Libraries: Federal Agencies Directory
Comprehensive listing of links to federal government agencies, including the legislative, executive and administrative branches, federal boards, commissions and committees, independent agencies and quasi-official agencies.
http://www.lib.lsu.edu/gov/fedgov.html

The Law Engine
Providing the best on-line law sources in a single-page format.
http://www.thelawengine.com/

LD Online
Web site on learning disabilities for parents, teachers and other professionals.
http://www.ldonline.org/

LD Resources
This site has been providing resources for people with learning disabilities since 1995.
http://www.ldresources.com

Leadership Conference Education Fund (LCEF)
Nonprofit public education and research organization.
http://www.digitalempowerment.com

Lissencephaly Resources
Website for information, support and research.
http://www.lissencephaly.org.uk

Making Your Case
Booklet offering techniques and insights to assist in lobbying efforts. Available through the Minnesota Governor's Council on Developmental Disabilities (651-296-4018) or order directly through the Council's website at:
http://www.mnddc.org/extra/publications.htm

Math and Reading Help
Math and Reading Help for Kids is a directory of hundreds of original articles, tips, and resources centered on the topic of children's learning. Although the articles in this site are primarily written to help parents make informed decisions about their child's education, there is also a comprehensive Just for Kids section containing dozens of articles written for a younger audience.
http://math-and-reading-help-for-kids.org

Minnesota Disability Law Center
The Minnesota Disability Law Center (MDLC) addresses the unique legal needs of persons with disabilities by providing free civil legal assistance to individuals with disabilities on legal issues related to their disabilities.
http://www.mndlc.org

Minnesota Governor's Council on Developmental Disabilities
Presentations and extensive historical archives related to society's treatment of people with developmental disabilities.
http://www.mncdd.org

Minnesota Special Education
Information on workshops, guidelines, policy questions and answers, issue papers and resources.
http://education.state.mn.us/html/intro_support_special_ed.htm

Minnesota State Register
Published weekly and includes Minnesota rules, official notices, professional, technical and consulting contracts, State grants and loans.
http://www.comm.media.state.mn.us/bookstore/stateregister.asp

National Association for Down Syndrome
Information, support, articles for parents and resources.
http://www.nads.org

National Association of Councils on Developmental Disabilities
Public policy information and resources related to developmental disabilities.
http://www.nacdd.org

National Association of School Psychologists
Reports, journal articles, etc. related to IDEA and other educational issues, as well as advocacy information.
http://www.nasponline.org/index2.html

National Center on Disability & Journalism
Site devoted to educating journalists and educators about disability reporting issues.
http://www.ncdj.org/

National Council on Disability (NCD)
Access to federal policies, programs, practices and procedures related to equal opportunities for individuals with disabilities. Includes agency information and resources.
http://www.ncd.gov/

National Alliance on Mental Illness
Easy-to-understand information about mental illnesses, mental health care, diagnosis, treatment and recovery.
http://www.nami.org

National Alliance on Mental Illness Utah
Improve the lives of those who live with mental illness and their families through support, education and advocacy.
http://www.namiut.org

National Dissemination Center for Children with Disabilities
Provides information on disabilities and disability-related issues for families, educators, and other professionals. Their special focus is children and youth (birth to age 22). If you have children with disabilities and don't know where to turn for assistance, make this your first stop.
http://www.nichcy.org/

National Health Law Program (NHeLP)
Provides extensive information on health care law affecting low-income people. The site is updated daily with health law news, legislative analysis, and health law Internet links.
http://www.healthlaw.org

National Home of Your Own (NHOYO)
Links to websites and resources related to integrated, affordable and accessible housing for people with disabilities.
http://alliance.unh.edu./websites.html

National Institute for Urban School Improvement
Extensive library of resources, research, publications and online sites related to inclusive education.
http://www.inclusiveschools.org

National Mental Health Association
Provides community-based network dedicated to helping all Americans live mentally healthier lives. Advocating for changes in policy; Educating the public & providing critical information; & delivering urgently needed Programs and Services.
http://www.nmha.org

National Museum of American History: The Disability Rights Movement
Virtual exhibit available through the Smithsonian Institute converted from a live exhibit that physically existed from July 2000 through July 2001. Exhibit covers the disability rights movement, technology, mobility, the ADA, the parents movement and other topics.
http://americanhistory.si.edu/disabilityrights/

The National Parent Network on Disabilities
The National Parent Network on Disabilities (NPND) provides a presence and national voice for families of children, youth and adults with disabilities.
http://www.npnd.org/

National Public Radio -- Beyond Affliction: The Disability History Project
A four-hour documentary radio series about the shared experience of people with disabilities and their families since the beginning of the 19th century. Web site includes excerpts from the shows as well as many of the primary source documents - extended interviews, images, and texts - from which the on-air programs were developed.
http://www.npr.org/programs/disability/

National State Policy Database
Rules and regulations related to special education, accessed by state, plus links to IDEA and all state education agency websites.
http://128.146.206.233/Resources/NSPD.cfm

Neighborhoods Online
Online resource center for grassroots organizations, volunteers and government agencies engaged in building strong neighborhoods and communities.
http://www.libertynet.org/nol/natl.html

New Hampshire Education Law (NHELaw)
The NHELaw publishes training manuals and conducts trainings for parents, educators, attorneys, and other professionals involved in education issues.
http://www.nhedlaw.com

NFCA: National Family Caregivers Association
News and information related to concerns of caregivers, including family members. Training opportunities, tips and research information.
http://www.nfcacares.org/

NICHY:
National Dissemination Center for Children with Disabilities
http://nichcy.org/resources/intro.asp

No Child Left Behind (NCLB)
http://www.ed.gov/nclb/landing.jhtml?src=pb

NORD - National Organization for Rare Disorders
A unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
http://www.rarediseases.org/

Not Dead Yet
Deals with euthanasia issues.
http://www.notdeadyet.org

The Nth Degree
Products, Designs, Stories and Links for our Disability Culture: for the Independent Living, Inclusion, Diversity and Disability Rights Movements.
http://www.thenthdegree.com

Office For Civil Rights
The mission of the Office for Civil Rights is to ensure equal access to education and to promote educational excellence throughout the nation through vigorous enforcement of civil rights.
www.ed.gov/about/offices/list/ocr/index.html?src=mr

Office of Special Education Programs
Information related to IDEA and its interpretation and implementation. Site offers policy information, research and statistics.
http://www.ed.gov/offices/OSERS/OSEP/index.html

OMBWatcher Online
Online newsletter covers the federal Office of Management and Budget.
http://www.ombwatch.org/ombwatcher/current.html

Online Health Services
Directory of disabilities related websites.
http://www.onlinehealthresources.com/Disabilities/

Opening Doors: A Housing Initiative for the Disability Community
Quarterly newsletter containing public policy reports and updated information to help people with disabilities live independently.
http://www.c-c-d.org/doors.html

Organizing for Social Change
Midwest Academy (Santa Ana, CA: Seven Locks Press, 2001).
http://www.midwestacademy.com

Parallels in Time
Information about the history of society's treatment of people with developmental disabilities; includes numerous videos and audio clips.
http://www.mnddc.org/parallels/index.html

Parent Training and Information Centers
Parent centers help families obtain appropriate educational services for their children, provide training and information on a variety of topics, and connect children with disabilities with community resources.
www.taalliance.org/centers

Partners in Employment
A six hour self directed e-learning course on how to find a job, write a resume, participate in an interview, and plan for your career. For a preview of the course and registration information:
www.partnersinpolicymaking.com/employment

People First
Links to People First organizations throughout the world. Self-determination resources and information for self-advocates with developmental disabilities.
http://www.peoplefirst.org.uk/pflinks.html

PEPNET
Provides resources and expertise that enhance educational opportunities for people who are deaf or hard of hearing - including those with co-occurring disabilities. PEPNet offers consultation, training, professional development, cutting edge technical assistance and other resources.
http://www.pepnet.org

Prader-Willi Association
Web site to promote research, education and support.
http://www.pwsausa.org

President's Committee for People with Intellectual Disabilities
Links and information related to mental retardation, including state and federal resources.
http://www.acf.hhs.gov/programs/pcpid

Project Action: Accessible Traveler's Database
Information related to accessible transportation and travel alternatives for people with disabilities. Information can be searched by state and city.
http://www.easter-seals.org

Public School's Special Education System: Funding Source for Assistive Technology
White paper developed by the Assistive Technology Funding and Systems Change Project.
http://www.nls.org/specedat.htm

Quality Mall:
Person-centered services supporting people with developmental disabilities
http://www.qualitymall.org/main/

The Ragged Edge
Online magazine covering the disability experience in America.
http://www.ragged-edge-mag.com/

Real Clout!
A how-to manual for community-based activists trying to expand healthcare access by changing public policy. Available through The Access Project (617-654-9911).
http://www.accessproject.org

Reed Martin
Web site of one of the United States' leading experts in special education law. Site includes access to publications, parent discussion groups and educational products.
http://www.reedmartin.com

Research & Training Center on Family Support and Children's Mental Health
The Center's research and training activities focus on improving services to children and youth who have mental, emotional, or behavioral disorders and their families.
http://rtc.pdx.edu/

Riverbend Down Syndrome Parent Support Group
Provides support and information to parents of children with Down syndrome in Southwestern Illinois.
http://www.altonweb.com/cs/downsyndrome/index.html

SABE (Self-Advocates Becoming Empowered)
Information, resources and news for self-advocates.
http://www.sabeusa.org/

SchwabLearning.org
Free information, resources, publications and support to children who struggle with learning and their parents. Funded by the Charles and Helen Schwab Foundation.
http://www.schwablearning.org

Sensory Integration Resource Center
Current information resources and resources related to sensory integration issues.
http://www.sinetwork.org/

Society for Disability Studies
A nonprofit scientific and educational organization established to promote interdisciplinary research on humanistic and social scientific aspects of disability and chronic illness.
http://www.uic.edu/orgs/sds/

"Sorry, Wrong Planet"
About Autism and related disorders.
http://www.isn.net/~jypsy/

Special Education News
Round-up of recent articles related to special education. Organized by interest.
http://www.specialednews.com/

TASH
Access to printed and online resources, as well up-to-date information on key public policy issues related to inclusion.
http://www.tash.org/

Thomas.gov
Comprehensive resource for information on the federal legislative process in the United States.
http://thomas.loc.gov

Utah Collaborative Medical Home Project
http://medhomeportal.org/

UCare:
Utah Department of Human Services Long Term Care Resource
http://ucare.dhs.utah.gov/UCare/index.jsp

U.S. Department of Education
Access to comprehensive information on education and educational policy in the United States, including special education.
http://www.ed.gov

U.S. Department of Education/Office of Special Education Programs
Information related to IDEA and its interpretation and implementation. Site offers policy information, research and statistics.
http://www.ed.gov/about/offices/list/osers/osep/index.html?src=mrUtah

Collaborative Medical Home Project
http://medhomeportal.org/

U.S. Department of Justice, Civil Rights Division, Disability Rights Section
An overview of Federal civil rights laws that ensure equal opportunity for people with disabilities.
http://www.usdoj.gov/crt/ada/cguide.htm

U.S. Equal Employment Opportunity Commission (EEOC)
News and information on equal employment in the United States, including information for employers, research, statistics, laws and regulations.
http://www.eeoc.gov/stats/index.html

The Virtual Activist
Compilation of activist sites, issues and resources available on the Internet.
http://netaction.org

Virtual Assistive Technology Center
Putting computers within reach of individuals with disabilities.
http://www.at-center.com/

The White House
The new White House web site features a more current design and more user-friendly features than the previous site, as well as accessibility features and compliance with the W3C Web Accessibility guidelines.
http://www.whitehouse.gov

Whole Schooling Consortium
The Whole Schooling Consortium is an international network of schools, teachers, parents and community members working to create schools that are based on its "Six Principles of Whole Schooling." The consortium provides information, dialogue, research, and support for teachers, parents, administrators, researchers, and policymakers.
www.coe.wayne.edu/wholeschooling/

With an Eye to the Past
Presentation celebrating the contributions Minnesotans have made to improve the care and quality of life of thousands of Minnesotans with developmental disabilities.
http://www.mnddc.org/past/index.html

WorkSupport.com (Virginia Commonwealth University)
Information, resources and research related to work and disability issues.
http://www.worksupport.com/default.asp

World Institute on Disability
Information related to inclusion, includes links to other sites with disability focus, publications and program information.
http://www.wid.org/

Wrightslaw
Site for accurate, up-to-date information related to advocacy for special education and special education law.
http://www.wrightslaw.com/